The Real Story

Posted on August 30, 2010

By Chris Hilderbrant, Chief Operating Officer

Chris HilderbrantThe real story behind the muck-raking article that appeared in the D&C on Sunday August 29, 2010, began about six months ago.  At that time, County Executive Maggie Brooks or someone in her administration decided to use the county’s payrolled investigators to try to dig up dirt on the Center for Disability Rights (CDR).  The limited findings of those investigators have since been blown far out of proportion, misconstrued and lied about by county officials in an effort to end the Consumer Directed Personal Assistance Program (CDPAP) of CDR. Read more

Filed Under CDR Programs, Chris Hilderbrant, Community-based services, Consumer Directed Personal Assistance | Leave a Comment

Maggie Brooks’ left and right hands haven’t met and other newsbits…

Posted on August 19, 2010

By Chris Hilderbrant, Chief Operating Officer

Chris HilderbrantWhile Maggie Brooks has been busy alleging that CDR is the target of Medicaid Fraud investigations by the Attorney General, her own Probations department, which was part of the investigation, has issued a letter to CDR announcing the conviction of two attendants and indicating that CDR was the “victim” of the fraud, not the perpetrator.  (See documents at www.cdrnys.org)

When faced with the reality that Maggie Brooks’ left hand has not met the right hand, Maggie’s spin doctors had to start getting creative.  According to the Democrat and Chronicle:  County spokesman Noah Lebowitz said even if CDR was victimized by the attendants, “it clearly shows they failed to properly screen and manage their employees. We hold them responsible for the action of those employees. They refuse to take responsibility for that.” Read more

Filed Under Advocacy, Americans with Disabilities Act, Attendant Services, CDR Programs, Chris Hilderbrant, Community-based services, Consumer Directed Personal Assistance, Home Care, Independence, Independent Living | 4 Comments

Monroe County’s Cancellation of CDR’s Contact is an Assault on a Hard Won Victory of the Disability Rights Movement to Establish the Right to Control Our Services and Our Lives.

Posted on July 29, 2010

By Diane Coleman, Director of Advocacy

Photo of Diane ColemanI first became involved in advocacy for consumer directed services in 1982 in Los Angeles.  Like many people with significant disabilities, I wanted to limit medical control and intrusion into my personal life.  Nurses and social workers can really  mess up your love life, and other freedoms most people take for granted.

By the 1990s, many policy makers began to see consumer controlled services as a best practice to be emulated.  As the executive director of an Independent Living Center in Cook County, Illinois, I ran one of a dozen research and demonstration projects about consumer direction, funded by the Robert Wood Johnson Foundation in the late 1990s.  Support for the concept grew.  More and more states adopted the model as an option for people with disabilities and seniors who could manage their own home care. Read more

Filed Under Advocacy, Americans with Disabilities Act, Attendant Services, Attitudes, CDR Programs, Community-based services, Consumer Directed Personal Assistance, Diane Coleman, Independence, Independent Living, Medicaid, Self Help, Take Action!, Voting | 3 Comments

Senate Passes Critical Disability Legislation

Posted on June 18, 2010

By Leah Farrell, Policy Analyst

Photo of Leah FarrellThe NYS Senate has been very busy these past few days.  No, I’m not referring to the weekly budget extenders – although both houses have been busy here.  I am referring to the list of disability legislation that will impact each and every one of us!

On Thursday, June 10, CDR joined several other Independent Living Centers from around the State at the Capitol to watch this important package of bills pass and show our support for the Senators who voted “aye.” Read more

Filed Under Accessibility, Advocacy, Americans with Disabilities Act, Assistive Technology, Attitudes, CDR Programs, Community-based services, Home Care, Independence, Independent Living, Leah Farrell, LiftLine, Public Transportation, RGRTA, Technology, Voting | Leave a Comment

America’s Future is ADAPT – A Message Delivered to Speaker Pelosi

Posted on June 15, 2010

By Stephanie Miller, Service Coordinator

Photo of Stephanie MillerMargaret Mead once wrote, “Never doubt that a small group of thoughtful, committed people can change the world.  Indeed, it is the only thing that ever has.”  I was reminded of this notion last Tuesday, June 8th, when twenty-five members of ADAPT interrupted a speech by Speaker of the United States House of Representatives, Nancy Pelosi.  For one brief moment, these two dozen activists held the eyes of the nation as they demanded Pelosi’s sponsorship of the Community Choice Act.

This was my first ADAPT action in over 15 years.  For the first time in a very long time, I had the opportunity to witness grassroots civil rights advocacy directly from the front line. Read more

Filed Under ADAPT, Activism, Advocacy, Americans with Disabilities Act, Attitudes, CDR Programs, Community-based services, Consumer Directed Personal Assistance, Home Care, Independence, Independent Living, Institutions and Institutionalization, Stephanie Miller | 1 Comment

Rochester Activists Join ADAPT to Confront Nancy Pelosi at Progressive Conference

Posted on June 8, 2010

Photo taken by Washington Post,  See Article “Pelosi delivers speech over screams of health-care activists” By CLICKING HERE

Already in the news, two dozen ADAPT activists in Washington, DC confronted Nancy Pelosi at a progressive conference today.  As reported by David Dayen (http://news.firedoglake.com/2010/06/08/dueling-protests-at-pelosi-speech-at-americas-future-now-conference/),
Read more

Filed Under ADAPT, Activism, Advocacy, Community-based services, Independence, Independent Living | Leave a Comment

Advocates Object to Erroneous Statement by Ravitch

Posted on April 2, 2010

FOR IMMEDIATE RELEASE:  April 2, 2010
Leah Farrell, Policy Analyst, 518-320-7100, lfarrell@cdrnys.org
Diane Coleman, Director of Advocacy, 585-546-7510, dcoleman@cdrnys.org

(Rochester, NY):  Today Crain’s Health Pulse (Friday, April 2, 2010) noted that after the completion of the New York State budget, Lieutenant Governor Ravitch will turn his sights on reigning in Medicaid spending, particularly in the area of long term care.   According to Crain’s, “As part of his study, he’ll look at spending on home care and personal care, the fastest-growing sector of Medicaid.”

“That’s just plain wrong,” said Bruce Darling, President and CEO of the Center for Disability Rights.  According to the most recent data from Thomson Reuters (formerly Medstat), from 2007 to 2008, nursing facility spending in New York increased 7% or nearly $477 million.  By comparison, personal care just grew by 2.4% or $69 million.   When you look at the spending for “Total Home Care” according to the Thomson Reuters data, spending actually decreased by $211 million, dropping 2.4% from 2007 to 2008.  Nursing facility spending far outpaced personal care and home care both in terms of percentage and overall dollars. Read more

Filed Under Advocacy, Attendant Services, Bruce Darling, Chris Hilderbrant, Community-based services, Consumer Directed Personal Assistance, Diane Coleman, Home Care, Independence, Independent Living, Institutions and Institutionalization, Leah Farrell, Medicaid | Leave a Comment

Success: CCA Resolution Passes the NYS Assembly

Posted on March 24, 2010

By Anita Cameron, Systems Advocate

Photo of Anita CameronAdvocates and staff with the Center for Disability Rights have been working hard to get support for the Community Choice Act. Upon hearing that several cities around the country, including New York City, and Binghamton, New York had already passed resolutions in support of the Community Choice Act, CDR launched the CCA Resolution Project at the end of 2008.

The aim of the Project is to get cities, towns, and villages in Monroe County to pass a resolution supporting the Community Choice Act. Read more

Filed Under Advocacy, Anita Cameron, CDR Programs, Chris Hilderbrant, Community-based services, Home Care, Independence, Independent Living, Institutions and Institutionalization, Medicaid | Leave a Comment

No Matter What You Call it…It’s Still a Cap!

Posted on March 12, 2010

By Anita Cameron, Systems Advocate

Photo of Anita CameronDisabled Activists Travel to Albany to Protest Proposed Budget Cap on Personal Care

38 activists from the Center for Disability Rights joined over 50 other people with disabilities from around the state, converging on Albany on Wednesday, March 10, 2010, to protest Governor Paterson’s proposed budget caps on personal care for people needing more than 12 hours of care per day.

Upon arrival, we broke up into teams of 10 – 15 people and visited the office of every member of the state legislature. Decked out in bright orange t-shirts and baseball caps that read, “No Matter What You Call it…It’s Still a Cap”, we were very noticeable as we scoured the Legislative Office Building. Armed with fliers and baseball caps, our members spoke to staffers and sometimes, the legislators, themselves, putting a human face on the issue by telling how these caps on personal care will send us into costly institutions. Read more

Filed Under Advocacy, Anita Cameron, Attendant Services, Attitudes, CDR Programs, Community-based services, Consumer Directed Personal Assistance, Home Care, Independence, Independent Living, Medicaid, Take Action! | 1 Comment

Advocates decry Executive budget proposal that determines some are “too disabled” for community living.

Posted on January 20, 2010

by Diane Coleman, Assistant Director of Advocacy

It’s all over the news:  Governor Paterson’s 2010-11 Executive Budget for New York State was released on Tuesday, January 19, 2010.

There’s plenty of criticism from many vested interests and industries, but disability concerns are not yet on the public radar screen.  As usual, CDR will work to change that.

The proposed budget includes a proposal that would set disability policy back thirty years.  The Governor proposes that seniors and people with disabilities who need more than 12 hours of personal care services a day will be required to switch to another program, and all of the proposed programs don’t allow consumer direction of services and, moreover, don’t work for people with significant personal care needs.  Read more in CDR’s first Media Release on the topic.  Read more

Filed Under Advocacy, Attendant Services, CDR Programs, Community-based services, Consumer Directed Personal Assistance, Diane Coleman, Home Care, Independence, Independent Living, Medicaid | 3 Comments

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