THANK YOU, Governor Cuomo!

Posted on January 4, 2012

By Bruce Darling, President/CEO

Bruce DarlingI realize that both the Center for Disability Rights and I have a bit of a reputation.
Some people say we are never satisfied.
Others try to portray us as complainers.
I feel we just call it as we see it.

Unfortunately, much of what you see when it comes to disability rights issues isn’t pretty.  Often, governmental bureaucrats and politicians oppose giving people with disabilities even their most basic rights.  Many don’t even take the time to understand the issues and some actually twist facts to meet their own self-serving purposes.

Still, we call it as we see it.

So, given the generally cantankerous nature of our commentary and what has been described as our “prickly” style of advocacy, the following statement might seem just a bit out of character, but we call it as we see it….

THANK YOU, Governor Cuomo! Read more

 
People with Disabilities Applaud Governor’s Commitment to Disability Rights

FOR IMMEDIATE RELEASE:  January 4, 2012        

Rochester: Bruce Darling, President/CEO, bdarling@cdrnys.org

Albany: Leah Farrell, Policy Analyst, lfarrell@cdrnys.org


People with Disabilities Applaud Governor’s Commitment to Disability Rights

(Rochester, NY): Today, the Center for Disability Rights and other disability rights advocates commended Governor Cuomo’s historic comments regarding people with disabilities in his State of the State address.  In his written address, Governor Cuomo explicitly acknowledged the civil right of people with disabilities to live in the most integrated setting as affirmed in the Supreme Court’s Olmstead decision and set forth a proactive agenda for supporting people with disabilities in the community: community-based services, housing, and jobs. 

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My Medicaid Matters

Posted on December 7, 2011

by Jensen A. Caraballo

Jensen A. CaraballoBeing disabled shouldn’t signify you’re unable to have goals; it should only mean you have to do things differently in order to achieve them. I live with a disability called Spinal Muscular Atrophy type II. It’s a disease that causes muscle weakness, ultimately it means I use a wheelchair to get around. I was born into a family stricken by poverty and I’ve relied on governmental services for financial and medical support.

Medicaid has been vital in my life for several reasons.  First and foremost, it has allowed me to live independently and direct my own personal assistance program. Secondly, it has supported me financially by paying for my medical expenses. Last but certainly not least, it has permitted me to successfully transition from a long-term care facility (nursing home) to an apartment in the community.

I was incarcerated for 2,135 days (5 years, 10 months, & 5 days), imprisoned in a nursing “home” behind invisible bars in a place where I could never grow as a person, start my own family, or live a life of fulfillment, simply because I’m disabled. I’ve struggled countless of times to prove that I am capable, worthy even, to attain my basic human rights. I have successfully broken through the bars and regained my freedom. Read more

 

Albany County pushes forward to build new nursing facility despite projected loss of millions!

Posted on November 23, 2011

By Leah Farrell, Policy Analyst

Leah FarrellAlternative title considered for this blog post: “HUH?!”

Civil rights issue aside (haha), the fact that Albany County is moving forward with the construction of a new nursing facility despite the projected annual loss of $26.5 million is appalling.   Why would a County, particularly in this economy, move forward with a plan that is so fiscally irresponsible?  Allow me to answer that question with another question, why do public entities continue to invest in institutional long term care when community-based services are far more cost-effective and preferred by consumers?

That is the million dollar question.  For the answer, look to nursing facilities’ lobbies, employee unions, and the vocal minority of family members who have loved ones in facilities (and want them to remain there).  This feisty cohort perpetuates the myth that localities have an obligation to provide nursing facility services.  Read more

 

MEDIA RELEASE

For Immediate Release:

Contact:  Chris Hilderbrant  (585) 546-7510

November 17, 2011                                                                                        

National Human Resources Association hosts fundraiser for All About You Home Care

Rochester, NY – The Rochester chapter of the National Human Resources Association (NHRA) will be hosting a silent auction fundraiser for All About You Home Care (a subsidiary of the Center for Disability Rights, Inc.).  The event will take place Thursday November 17th from 6:00 – 8:30 pm at Midvale Country Club in Penfield.  The event is open to the public, appetizers included with a cover charge.

All About You Home Care (AAY) began services in 2009 and has grown steadily since.  Unlike many home care agencies, AAY has a distinct focus on meeting the needs of individuals with chronic disabilities, not those with post-acute needs.  Individuals served by AAY are likely to need support for the rest of their lives and AAY plans to be there for them.  AAY is a Licensed Home Care Service Agency where individuals with disabilities and seniors work with knowledgeable and compassionate staff.  Individuals receive quality in-home service to meet their unique needs to remain home and avoid unwanted institutional placements.

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