Import New Service at the Regional Center for Independent Living (RCIL)

Shelby BourImportant new service at the Regional Center for Independent Living (RCIL)

My name is Shelby Bour, and I am thrilled to join the Regional Center for Independent Living (RCIL) as the Healthcare Advocate. I am dedicated to providing healthcare benefit advisement and advocacy as part of RCIL’s benefits team. As the Healthcare Advocate I am available to help consumers with all aspects of healthcare benefit planning including:

  • Assisting with Medicaid, Medicaid Long Term Care, and Medicare,
  • Explaining the differences among Managed Care plans,
  • Assisting with health plan selection and enrollment into Managed Care,
  • Obtaining home services to ensure independence,
  • Appealing healthcare denials and serving as an advocate throughout the appeal process, and
  • Representing consumers at fair hearings and advocating for the full integration, independence, and civil rights of people with disabilities.

The Affordable Care Act and Medicaid’s move into Managed Care have brought many changes to the health insurance landscape. The Regional Center for Independent Living (RCIL) recognizes the impact these changes have made and continues to expand services to further meet the needs of consumers. Consumers with healthcare benefit questions or concerns can contact me, Shelby Bour, at (585) 442-6470 or by email:

An Update on CFC and the Nurse Practice Act

An Update on CFC and the Nurse Practice Act

by Norain Siddiqui

July 26th marks the 24th anniversary of the Americans with Disabilities Act (ADA), and the nation is reminded that the government has a legal obligation to provide people with disabilities the same rights and protections that are awarded to the rest of the population

In 2012, Governor Cuomo selected to implement the Community First Choice Option (CFC) in New York State. The Center for Disability Rights (CDR) and the disability community heralded this decision because CFC is a federal initiative that incentivizes the provision of long term services and supports in the community, as opposed to nursing facilities and other institutional settings. CFC will also provide the State with enhanced federal funding called FMAP (Federal Medical Assistance Percentage) which will allow New York to generate a net revenue of approximately $350 million every year if CFC is implemented correctly.

Many disability advocates are familiar with the Supreme Court’s 1999 Olmstead vs. L.C. decision. Among the most significant court decisions to be drawn from the ADA, it rules that states must provide services and supports to individuals with disabilities in the most integrated setting possible. This means that states cannot force people with disabilities into institutions when they can successfully live in the community. People with disabilities now have the legally enforceable right to remain in their own homes with the services and supports they need.


CDR to Celebrate the 24th Anniversary of the Americans with Disabilities Act (ADA) all month of July!

CDR and the Regional Center for Independent Living (RCIL) are hosting a series of events throughout the month of July to celebrate the 24th Anniversary of Americans with Disabilities Act (ADA). Enacted on July 26, 1990, the Americans with Disabilities Act is often viewed as the Civil Rights Act for people with disabilities. Each year we gather our community together to celebrate the great progress we have made, while also planning our work to continue to eliminate the barriers that still remain in our society. Please see below, a list of the events CDR and RCIL will be hosting this year. Join us!

Center for Disability Rights Statement Urging NYS Legislature to Support Olmstead on the Decision's 15th Anniversary

Issued on June 19, 2014

by Bruce E. Darling, President/CEO

This weekend marks the 15th anniversary of the landmark Supreme Court Olmstead decision. This decision affirmed that people with disabilities have a right under the Americans with Disabilities Act to live in the community or, as the court said, the most integrated setting.

People with disabilities across the country are celebrating this anniversary with events highlighting how the decision has allowed Americans with disabilities to live in freedom and share in the American dream. In New York, however, disability rights advocates are concerned that the state legislature will not only fail to enact legislation that would implement this 15 year old decision that requires states to stop discriminating against people with disabilities, but in fact may pass legislation that effectively blocks Olmstead in the state and deny disabled New Yorkers their right to live in the community.

Last week, over 70 people from across the state rallied to urge the New York State legislature to pass legislation implementing the Community First Choice Option. When the leadership refused to commit to moving this legislation forward, 17 of the protesters were arrested.

Determination at the Negotiation Table Proves Successful in Westchester County

Justin Young, Pooled Trust AdvocateDetermination at the Negotiation Table Proves Successful in Westchester County

By Justin Young, Pooled Trust Advocate

According to the Second Addendum to the eighth New York State Department of Health Administrative Directive issued in 1996, it states “verification that the income was placed into the trust is required. In order to eliminate the need to verify this on a monthly basis, it is recommended that you advise the recipient to divert the income directly to the exception trust.” To ensure the New York State Department of Social Services offices are correctly following this policy, an ongoing initiative has been conducted by the Center for Disability Rights, Inc. Community Supplemental Needs Trust. The purpose of this initiative has been to ensure as many counties as possible follow the method of Annual Verification proving the Trust Beneficiary have placed their funds into their trust accounts on a monthly basis.

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